Conversation Between Cardiologist And Heart Disease Survivor Leads To Study
In October 2009, Dr. Sharonne Hayes, a cardiologist at Mayo Clinic who focuses on treating women with heart disease, was approached by a woman who’d experienced a rare cardiac condition. This conversation between the two happened at the annual WomenHeart Science & Leadership Symposium at Mayo Clinic. The woman previously had been told that her condition – spontaneous coronary artery dissection, also known as SCAD – was poorly understood, but that she was lucky because she survived. She was desperate for answers for herself and for others who suffered from SCAD. Dr. Hayes and the woman discussed the possibilities of a study. “I couldn’t not do this study, or at least try. The most powerful motivator was the patient need and my personal connection to this group of women through WomenHeart,” Dr. Hayes says. Today, almost two years later, the results of a pilot study – involving 12 SCAD survivors from four countries using social media – are published in Mayo Clinic Proceedings. An accompanying editorial calls the use of social media a “novel solution” to recruit research participants, particularly for rare conditions. A larger study is now open for recruitment.
Click here to view the article.
To view the news release click here.
Journalists: The following video and audio clips are available for download and use in your post-embargo stories.
Pkg (.mov) / Nats Pkg (.mov) Intro/Script (.doc)
Dr. Sharonne Hayes – 2 Soundbites: MOV MP3 / MOV MP3 cg: Mayo Clinic Cardiologist
Dr. Marysia Tweet – 2 Soundbites: MOV MP3 / MOV MP3 cg: Mayo Clinic Cardiologist
Lee Aase – 2 Soundbites: MOV MP3 / MOV MP3 cg: Director, Mayo Clinic Center for Social Media
Animation: MOV
I am a SCAD patient. It was discovered in the cath Lab and while stents were being placed, a seperate artery disected. My doctor placed 5 stents at that time and one month later I had a double bypass because of futher disection.
i was 52 at the time of the attack and was in good health, low blood pressure, low colestrol and not overweight and was reasonabily active. There is no history of heart problems in my family.
I had a heart attack September 9, 2011. I am a 38 year old female and relatively healthy at the time of my attack. Low cholesterol and low blood pressure. It took hours before the ER finally discovered I was having a heart attack. They almost sent me home…telling me basically they didnt know what was wrong. I had two stents that night and my doctors have decided I also have SCAD.
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I am a female and at 45, I suffered a heart attack on October 10, 2011, and received two stents. When I asked the cardiologist what caused the heart attack, I was told to look it up on the internet. I went to a new doctor who believes, after watching the DVD, that my heart attack was caused from Dissection. I am so relieved to see that there are others that have found each other and are working with the MAYO Clinic on research to better understand this medical condition.
While heart disease runs in my family, I was active and relatively healthy. I have never smoked and my cholesterol was ok. Further, I had tests – including angioplasty three years ago and had no blockage. I did have a hysterectomy three years ago and am wondering if there is any correlation between SCAD and hormone replacement.