Mayo Clinic today announced the launch of its culture blog, Sharing Mayo Clinic, which provides an online site for patients and employees to share their stories about what makes Mayo Clinic unique.
“Mayo Clinic’s reputation has been built by patients sharing their personal Mayo stories with family members and friends,” says Lee Aase, Mayo Clinic’s manager of social media and syndication. “Many patients share their Mayo experiences with others when they go home. Sharing Mayo Clinic offers a place for this worldwide community of patients and providers to gather and tell their stories.”
“Patient feature stories are among the most popular pages on our MayoClinic.org Web site,” says Thoralf Sundt, M.D., a Mayo Clinic cardiovascular surgeon. “This new blog will enable many more patients and their families to share their Mayo Clinic experience in their own words. In turn, we at Mayo Clinic look forward to learning how to preserve those services that are of most value, how we might improve those that can be strengthened, and enhance the health care experience for all of our patients in the future.”
Sharing Mayo Clinic builds on Mayo Clinic’s existing social media intiatives, including this news blog, as well as:
- Mayo Clinic YouTube Channel
- Mayo Clinic Facebook page
- Mayo Clinic podcast blog
- MayoClinic.com consumer blogs and podcasts
Below is a link to a YouTube interview with Lee Aase describing the new blog.
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I’ve been to the Mayo clinic as well as my daughter. We came with hope and trust and that was very quickly eroded. I know that you have helped thousands hundred’s of thousands but one group of poeple you have failed and I know you know who we are. I ask that in this year of CHANGE that you rethink your position and change for the sake of empathy and help us to regain our dignity. Restore the trust that once was. Your Canadain nieghbor.
I did not even remember writing this due to my Lyme Disease. I came to you in 1988 but was sent me home with infections which your doctor did not inform my doctor of. He sent a letter saying that I needed psychiatric help,even though your psychiatrist said that I needed pain control and I was NYD. The
one thing I want to say is that the Mayo brothers, who started this clinic, would be very disappointed in the way the Mayo Clinic has treated Lyme Sufferers. I advise that all your physicians need to read your history of why this clinic was started. Also I would suggest you hire Physicians who are trained in all aspects of early and late stage Lyme Disease. Investigate both sides of the Lyme camps so better treatment protocols can be set up for those of us who are suffering and want a chance for a better life My hope is that we can again trust the Mayo Clinic no matter what disease we have.
I have received surgery and many checkups at Mayos. Overall i have been happy with the care i received. Not even Mayo Clinic is perfect and i advise all patients to stay on top of their own treatment. Don’t be afraid to complain or offer your own opinion.
I have a friend who was diagnosed with pancreatic cancer at the age of 24. She went through chemo and radiation (it seems that her chemo treatment was forever). She eventually got better, after 2 years, however, about 4 months ago she begain to feel ill after eating, she could not hold anything down. She also developed painfully sore feet. As a result of not being able to keep food down, she lost a tremendous amount of weight. It was found that she had a blockage in her upper intestines and her oncologist and surgeon decided to that she needed to have an operation. Of course, before the operation she had to go through some tests and during the testing stage the surgeon noted that her liver enzymes were quite off. About two days later her surgeon and her oncologist informed both my friend and her mother that there was nothing more they could do and that she needed to fill out paperwork for hospice. My friend is only 27 with two small children and we are all quite shocked and saddened. Have you ever heard of pancreatic cancer affecting someone so young? (By the way, she found out that she had pancreatic cancer after a long bout with stomach pain, she thought it was possibly caused by ovarian cysts, so she waited a while before seeing her doctor.)
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Ive always heard mayo was the best,but they misdiagnost me twice and am still in great pain everyday.Had three hurnias repaired in stomach in 1987 and mayo was giving me injections for scar tissue.Wanted them to go in and see what was wrong.Surgen said no.Finaly found a good surgen and he found broken wires.The second time i was sick to my stomach after falling off a big ball.Mayo checked my galbladder said its ok.New surgen had to take galbladder out. It was brused and daseasd
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Mayo Clinic SAVED one of my best friends. Some types of cancer can be hard to diagnose. I lost a brother to lung cancer only after a 3rd opinion was it found. To little to late. The Mayo clinic is in my opinion one of the best clinics in the world period. Can mistakes be made, or mis-diagnosed. Of course that is why we are called humans and not machines. But you won’t find a better clinic devoted to helping you.
God Bless the Mayo Clinic!
I have been to mayo clinic for many of my treatments. They really provide quality treatment with experience. They are one among the best with latest technology medial equipments. They also provide health care benefits to the patients at ease.
Collin paul
I have had many friends, family members, and customers use the Mayo Clinic and their incredible reputation is an absolute direct reflection of the outstanding care they provide to their patients. The new blog will be a great resource to existing and new patients and their loved ones to follow all that Mayo Clinic has to offer. Thanks Mayo Clinic!
We are planning to come to Mayo Clinic, Rochester, MN for cancer treatment, it is suspected to be bile duct cancer. Please can someone advice where we can rent a furnished apartment on month to month basis since we do not know how long the treatment will last. Does Mayo Clinc have furnished rental apartment for people accompanying the patient? Any advice on where to stay will be greatly appreciated.
Try this link: http://www.mayoclinic.org/travel-rst/lodging.html
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I am truley amazed that my comment has been left on this blog. I read you lyme guildlines and you have made some changes for the better. I downloaded some cimments made by Burton A Waisbren Sr. M.D. FACP
Founding Member and Fellow of the Infectious Disease Society of America on Chronic LYME.
He has some very valid points on lyme.
Burton A Waisbren Sr. M.D. FACP
Founding Member and Fellow of the Infectious Disease Society of America
This essay will start with a definition of Chronic Lyme disease: Chronic Lyme disease is a syndrome that results when individuals who have been inoculated with multiple microorganisms by infected ticks and who have not responded to an initial course of doxycycline develop extreme fatigue, intermittent fever, joint pain, muscle pain, brain fog, concentration difficulties, skin rashes, and in many instances symptoms of autoimmune disease to the extent that they impinge upon their quality of life.
When one comes face to face with patients of this type in whom other diseases are ruled out, it is obvious that something serious is amiss.
It’s a conundrum why a group of respected physicians who are members of the Infectious Disease Society of America have not recognized this and have, instead, written a guideline that essentially denies that the syndrome exists. This guideline has resulted in literally hundreds of patients unable to be treated for Chronic Lyme disease.
Conclusions regarding this conundrum may be:
1) The physicians who wrote and signed the guidelines of the Infectious Disease Society of America may have seen what they expected to see in the manner of the populace described in the Hans Christian Anderson’s perceptive fairy tale, “The Emperor’s New Clothes.”
2) Perhaps the authors of the guidelines had too much respect for authority and decided to sign the guidelines based on the opinion of some of the members of the society without having personal involvement in the treatment of the syndrome.
3) Perhaps they were unduly influenced by the expenses incurred in the many factors concerned in the empirical treatment of Chronic Lyme Disease.
4) Most probably they were influenced by controlled studies in the medical literature, which were based on Deductive conclusions rather than Inductive conclusions as described by Francis Bacon in 1622. Have they forgotten the well accepted statistical dictum – absence of proof does not equal proof of absence.
Deductive conclusions in regard to Chronic Lyme disease are suspect because there is no way to prove that a person has Chronic Lyme disease. Personal observations (inductive) are what has to be relied upon to conclude that an individual has Chronic Lyme disease.
In Hans Christian Anderson’s story, a little boy turns the tide by yelling out, “But the emperor has no clothes!” At the present time we must await the time when many will yell out “These patients are sick!”
This point will have to be proven by inductive observational studies of patients subjected to empirical treatment for chronic Lyme disease. For these inductive studies to reach a level of scientific certainty great enough to indicate empirical multifactorial treatment of chronic Lyme disease, physicians will have to once again believe what their patients tell them. To do this they will have to remove the “double blind” blinders put on their eyes by Claude Bernard in his monumental book of experimental medicine.
The Internet will provide service in this regard if physicians who treat chronic Lyme disease will present to their colleagues and patients detailed case reports regarding this experience on the internet as well as in the medical literature. Respected medical journals still reluctantly present case reports. Unfortunately, when they do so they usually warn about anecdotal evidence. In this respect isn’t it ironic that huge numbers of individuals strongly accept ideas based on anecdotes presented in religious tomes and serious literature.
Phillips, in a brilliant critique of the IDSA guidelines, has separated out numerous observational studies that suggest the occurrence of chronic Lyme disease as described in this essay.