Comments on: 200-Year-Old Mystery Solved: Intraneural Ganglion Cyst

By: mayoclinic

mayoclinic — Wed, 01 Feb 2012 15:45:03 +0000

We have referred your question to the doctor.

By: Dyanna Greaves

Dyanna Greaves — Wed, 01 Feb 2012 15:42:49 +0000

I have undergone 3 procedures to remove these ganglion cysts from my hips. I now have 2 rather large ones on my left hip. My dr said I will probably have these reoccurring for the rest of my life. I have extreme pain constantly in both hips. Is there any information I can get to learn more about this? I really don’t want to go through a 4th procedure, as it takes a lot of mass from my hips.

Thank you,
Dyanna

By: Elizabeth Rice

Elizabeth Rice — Mon, 18 Jan 2010 21:02:23 +0000

Thanks for your comment, Christina. We cannot recommend a particular surgeon or medical center in your area, but if you would like to be evaluated at Mayo Clinic, you can call 888-509-8773 to request an appointment.

By: Christina Cropp

Christina Cropp — Mon, 18 Jan 2010 18:38:34 +0000

I have a huge cyst on my right hip that is causing severe pain. I’ve been schedule twice for hip replacement surgery, but I feel that the cyst is the root of the pain and not the hip. I live in the DC, VA, MD, area and was wondering if you could recommend a surgeon here that would take care of the problem?
Thank you in advance,

Christina Cropp
tinacropp@hotmail.com

By: Elizabeth Rice

Elizabeth Rice — Mon, 09 Feb 2009 15:59:04 +0000

Thank you for your comment, Kristina. Unfortunately, there is no program for free medical care for mystery diagnoses at Mayo Clinic, as many of the 500,000 patients seen here every year come seeking answers to their “medical mysteries.” However, you can always request an appointment at Mayo Clinic by visiting: http://www.mayoclinic.org/patientinfo/appointments.html.

By: Kristina Bailey

Kristina Bailey — Sat, 07 Feb 2009 03:18:24 +0000

I remember reading not too long ago about applying for a medical mystery type thing at Mayo. This was where you submitted your mystery illness and MDs decided whether to take your case for free.

Is this still available and if so, how would I submit information for possible care?

Best Regards,

Kristina in NH

By: Elizabeth Rice

Elizabeth Rice — Tue, 09 Dec 2008 14:28:37 +0000

Thanks for your comment, Donna. Dr. Spinner is more than happy to review your records and MRI. You can call 507-284-8008 to request this. I’ll send you an e-mail as well.

By: Donna

Donna — Sun, 07 Dec 2008 02:02:18 +0000

I have a gangliopn cyst in my right hip. it sits deep that i was refered to orthopedic hip guy who said he would not touch it. it has been causing on and off pain for over a year since i was hurt but the past 3 months have been non stop pain sometime so bad i get pain down the leg and at times cannot even move my right leg. i cannot ding anything on line about this? do you have any info you can post regarding ganglion cyst in the hip . it was so bad they sent me for a mri after x rays showed i did not break anything (which was what they suspected)thanks so much

By: Elizabeth Rice

Elizabeth Rice — Thu, 30 Oct 2008 01:20:00 +0000

Thank you for your interest, David. You can request an appointment by calling 507-284-8008. I will follow up with you directly via e-mail as well.

By: David Daniels

David Daniels — Sun, 26 Oct 2008 02:49:12 +0000

I have a huge ganglion cyst on my shoulder that has been giving no problem for 10 years. It never gave me pain until yesterday, but WOW, it has made up for lost time! Are you still doing research? Want a really big one? Golf ball size and growing. I have to do something soon.

Thanks,

David Daniels