Comments on: Crohn’s Disease Study on Infliximab, Azathioprine

By: Newsletter Editor

Newsletter Editor — Mon, 14 Sep 2009 17:26:54 +0000

The appointment number for Mayo Clinic’s Pediatric Gastroenterology is 507-266-4950.

By: Newsletter Editor

Newsletter Editor — Thu, 10 Sep 2009 14:45:15 +0000

Thank you for your comment on Crohns disease. It has been forwarded for further information.

By: Jason Miller

Jason Miller — Tue, 08 Sep 2009 17:03:41 +0000

My son has Crohns he is 10 years old and was diognosied at the age of 5. He has tried remicade and many other treatments. First he had the 3 dose treatment. Then a year later we tried it again and he started to get a rash around his mouth after starting the second dose. The Dr. immediatly stopped the remicade and said it does not work. We are now facing surgery and I wanted to ask Dr. Sandborn if he knows of any other treatment we could try. My sons Dr. had told us that we have tried everything. He is currently taking Humira 40mg. But his last colonoscopy showed that the inflimation is great and not responding.

By: Therese Besemann

Therese Besemann — Fri, 28 Aug 2009 16:07:16 +0000

My son was diagnosed with Crohn’s. His father is now 54 years old and was diagnosed with Crohn’s at the age of 12. My son is 12. My husband has had almost all his intestines removed when he was in his teens and 20’s, he has approximately 8-inches of small intestines remaining. We live in a small town of about 30,000 in North Dakota. I am very consered about my son’s treatment for the Crohn’s. We have one hospital in town, Trinity. They are not known for quality care. Even though I have dealt with Crohn’s with my husband, he has been in remittance for over 20 years. His condition without intestines is very different from my son’s. What should I do? Should we try to receive help at Mayo in Minnesota? My husband was treated there about five years ago for pancreitis and other complications from his Crohn’s. I need soem advise and information about my son’s diet. Any assistance would be greatly appreciated.

By: Amy Tieder

Amy Tieder — Thu, 23 Jul 2009 13:21:35 +0000

I would recommend you call the Mayo Clinic Inflammatory Bowel Disease Clinic at 507-538-3270 (Minnesota) or visit our web site for more information on appointments: http://www.mayoclinic.org/ibd/

Thank you.

By: Alicia T

Alicia T — Sun, 19 Jul 2009 19:24:11 +0000

My husband suffers from Crohn’s disease; he was diagnosed in 2000. He had his first surgery in 1991 (they didn’t know then that he had Crohn’s yet). His second surgery was in 2004. He has been on remicade since 2005. He we are again and he needs more surgery (another fistula). He has lost so much weight; he’s always sick; diareaha all day everyday vomiting, he has bumps that seem like bug bites but aren’t they flare up all the time in different places mostly his face neck and legs. He has something bothering his eye that seems to be the same thing just extra irritating because its on his eye. He often times wakes up realizing that he didn’t make it to the bathroom this has become more frequent. He doesn’t want to eat because of the fear of how it will feel to come out. He is supposed to have surgery soon but we are scared that mabey we he needs to be seen by
someone- to possibly find something that works better for him. However what role does insurance play in this? He has keystone 65 and is on disability although he is only 30 years old. Please respond I’m worried about this surgery. Thank you Alicia Thompson

By: Jeannie R

Jeannie R — Sat, 18 Jul 2009 12:48:53 +0000

I have had two bowel resections, 6 anal fistulas,perirectal abscess I& D several times, gall bladder removed, uterus and ovaries removed,erthema nodosum in my leg, and sepsis from a pic line which my vein in my arm had to be removed, had to have a thoracenteis to drain the lung, chest tube inserted after sepsis My mother had lymphoma. I am considering taking Remicade since now I have crohn’s in small intestine in the jenjum. Any research done on the chances of me getting lymphoma since my mother had it? I was taking Asacol and now taking Pentasa. After 10 years straight of taking prednisone my bowel perforated which caused the first surgery. I do not want to have a 3rd surgery and am at a lost of what to do. I am scared of taking Remicade or Humira and am at a lost as to what to do. Any comments greatly appreciated.

By: alex arguello

alex arguello — Thu, 09 Jul 2009 16:17:53 +0000

I was just wandering when the doctor said that combination of the therapies increases the side effects a little, how is he justifying lymphoma or any type of cancer a a small risk. He also said that they did not find too much toxicity from the drugs through out the trial. The trial was done for 6 months, the people that will be prescribed these drugs will be on them for the rest of their life. How do they know that the toxicity levels will not increase the longer you are on the drugs?

By: Amy

Amy — Wed, 22 Apr 2009 15:23:11 +0000

Hello – someone from our Mayo Clinic International Office will be emailing you with more information.

The link to that office is:

http://www.mayoclinic.org/english/appointments.html

Thank you.

By: vanilla

vanilla — Tue, 21 Apr 2009 12:44:42 +0000

I hope know some Things about my medicines Hummera * because nobody In my country *helped me to know I do not know English well But I hope that you will help me in that am from
Saudi Arabia
Aboso me please